Well. Not so usual a Dana-Farber visit after all. Looks like I will remain on the Interleukin-2 trial for a little longer because it is helping with the fibrosis. After my next visit, I will likely be put on a different trial involving the B cells versus the T cells now. What I am experiencing is apparently very atypical. The pain is likely be linked to constriction/impairment of the nerves due to an auto immune reaction similar to lupus or rheumatic. I don't have the arthritic symptoms but the pain is on lupus levels. A new change was made to the oxycodone which should help for night time but have to gut through the day.
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