GVHD .. branching out I think

Woke up with the stomach in knots and some serious hand joint pain. I've been expecting the joint pain but the stomach issue is new. Hoping this is not a new branch of the Graft Versus Host Disease. Nails are also darkening and showing a growth line again. Wonder if that is related to the meds. i am still waiting to get the prescription for my tacrolimus cream due to approval delays with the insurance company.he steroid lotion i was given for the skin related GVHD symptoms and that has made a huge difference.

Dana Farber visit not exactly what I had hoped

My blood levels (red, white, platelet) continue to improve but there is bad news.

I have the beginnings of GVHD which accounts for the skin sores/rashes all over plus excima like cracking on finger tips.

I was supposed to go off my tacrolimus (anti rejection drug) today but that is delayed now. 

New meds, a steroid cream and tacrolimus cream, are being introduced to help. 

I was also informed to expect arthritic symptoms across all joints.

Something to look forward to I guess.

Dana Farber tomorrow

Oddly enough I am looking forward to going to Dana Farber tomorrow morning.

I am very curious to see where the current numbers are.

In a few categories, I was at or approaching low normal which is a nice change of pace.

New developments

I have not been posting much lately because there isn't much change.

The old/black nail locations continue to grow out but the nails are super brittle.

The other thing that's new are circular sores on my arms and legs.

Each is about a quarter to half dollar in size and is shaped almost like ringworm.

The problem is dry skin.

Need to get past the problem by using moisturizer religiously but hate doing it.

Ah well.

Better get to it else the wife will start yelling.