I went to Dana Farber today and the the news is largely good.
Blood levels are doing well.
My only new thing is my eyes and face are getting puffy.
The nurse practitioner I spoke to is not 100% on the cause.
It could be graft versus host or I could simply be developing allergies after the transplant.
She is evaluating my drug levels and will give a call tomorrow based on the results.
Depending on the results, I may be getting my tacrolimus dosage lowered.
That will be nice because it will help lower my tremors.
Wednesday, September 28, 2011
Sunday, September 18, 2011
News update
Hi everyone,
I haven't updated in a bit because there hasn't been much new to report.
Pain is gone now which is always nice.
Finger nails are beginning to turn black. Between that and the bald head, I'm beginning go goth. :)
Tremors are sill there but they are something I will have to live with while on the medications.
Hair is continuing to jump ship. Eyebrows and eyelashes are getting very thin for example.
The biggest news is that I got the Hickman line removed from my chest.
I haven't updated in a bit because there hasn't been much new to report.
Pain is gone now which is always nice.
Finger nails are beginning to turn black. Between that and the bald head, I'm beginning go goth. :)
Tremors are sill there but they are something I will have to live with while on the medications.
Hair is continuing to jump ship. Eyebrows and eyelashes are getting very thin for example.
The biggest news is that I got the Hickman line removed from my chest.
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