Things went very well.
I have been taken off of Acyclovir, Bactrim, Folic acid, Lasix, and the multi-vitamin.
Numbers are very good with:
Current Range
RBC 4.56 4.2-5.6
WBC 11.7 3.8-9.2
PLT 374 155-410
White count is a little high but likely due to joint inflammation.
Dr. Antin wants me to make an appointment to see Dr. Helfgott in Rheumatology at the Brigham again.
He also wants me to start taking Tylenol and Aleve to try bringing down the swelling.
The expectation is it won’t help much but worth a try until Helfgott can look again.
What we are seeing in my hands is not GVHD so we need to start exploring other things.
My next appointment is with a nurse practitioner in November.
They will be having me do a bone density scan while here. The density scan is just an x-ray, not like the biopsy. It is not uncommon for decreased bone density after a transplant.
I got my last set of shots today, six in total with half to each arm.
Since my immune system is now up and running, it is possible I could track fever up to 102 or so and significant soreness as a side effect.
I could also get a skin condition similar to shingles so I would want to restart the Acyclovir and let Dr. Antin know if that happens.
All in all, I am right where I should be and am pleased with the results.
Now it is up to the Rheumatologist to finally get a handle on the pain. It has spread from just the hands to the shoulders, hips and even toes. If this is arthritis, wow.
