Tuesday, November 26, 2013

The name of the pain does not remain the same

Dana Farber examined me this morning and they state that the diagnosis from the rheumatologist was incorrect.

The Stem Cell Transplantation Program Chief stated that I am having an adverse Graft Versus Host Disease (GVHD) symptoms that, if not treated, can cause some significant and life threatening problems.

Cool.

They wish for me to undergo a process called Extracorporeal photopheresis (ECP) to address the issue and reverse existing damage.

ECP is similar in some ways to dialysis in someways because my blood is "cleaned" and returned.

Using two iv leads, blood is extracted, mixed with some chemicals, flashed with UV light, then fed back in.

Sounds like oodles of fun for all concerned.

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